Monday, April 30, 2012

A ray of HOPE!!!

With hope in our hearts McKenna, Lindsay and I went to the pain management clinic for Kenna's first appt. last Thursday.  The most amazing Dr walked in and we knew immediately that we were in the right place.  He spent 3 hours with us that day and for the first time in 15 months we had found a medical professional that understood Kenna's pain!  She will have 3 rounds of shots to the back of her head starting tomorrow, under sedation and hopefully lastng 24 hours.  The plan is to have 3 set of these and by the 3rd round if her pain hasn't subsided he will get her into surgery without further delay.  We were afraid that she would have to wait 4 months of trial and errors before this would happen.......needless to say we are ecstatic! 

I leave for AZ to visit my mom and dad and will not get to be there for her 1st and 2nd rounds but I can't wait to here how they go!

If surgery is elected they will place a periphal nerve block stimulator into her head and electrodes will run under her neck muscles and attach to a pace-maker under her chest wall.  This device will only cure her occipital neuralgia it will not cure her severe migraines.  At least then maybe we can get her down to the Mayo clinic to a migraine specialist to work on those.

Tuesday, April 24, 2012

Here we go again.....

I was finally contacted today by the United Pain management center to schedule Kenna's first appt.  It may have taken them a month to get back to me but she does have an appt this Thursday at 11:15.  So......here we go again. Another new dr, another person to explain every detail of the last 15 months, hopefully this is the place that will help Kenna.  There's a part of McKenna and I both that is scared to look reality in the face.  Will it look like hope or will it look like devastation like so many times before.  Please say some prayers that this is the right place for McKenna to be to finally find some relief and that her brain surgery will either be just a quick 4 month process away or maybe just maybe sooner!